COVID-19 (Coronavirus) – Study updates

COVID-19 For NEPTUNE Study Participants:

Due to the COVID-19 pandemic, we now have approval to complete your study visits over the phone or by email.  This is to help keep you, your family, and our research staff safe.

If you think you may have been exposed to or have COVID-19, please contact your primary care doctor.  If you have concerns about your own risk and health because of your kidney disease, your nephrologist should be able to advise.

If you have any questions about your NEPTUNE study participation, please do not hesitate to get in contact with your NEPTUNE study coordinator. If your study coordinator is unavailable or you are unable to reach them, please email

For the most up to-date information about COVID-19, and how to best prepare, please refer to the guidelines from the CDC. (

COVID-19 – General considerations for kidney patients:

DO NOT stop immunosuppressant medications unless you speak to your/your child’s nephrologist.

Take steps to prevent or minimize exposure.
People of all ages with underlying health conditions (like kidney disease) seem to be at higher risk of developing a more serious COVID-19 illness.  It is important for you and your family to take steps to prevent or delay exposure.

  1. Wash your hands frequently with soap and water for at least 20 seconds. If soap and water is unavailable, use a hand sanitizer that contains at least 60% alcohol.  This will kill the virus that may be on your hands.
  2. Avoid touching your face. The virus can enter your body through your eyes, nose, and mouth.
  3. Keep space between yourself and others. The virus can spread through small liquid droplets when someone speaks, coughs, or sneezes.
  4. Practice good respiratory hygiene, and ask those you live with you to do the same. Cover your nose and mouth with a tissue or your bent elbow when coughing or sneezing.  Dispose of any tissue used right away.
  5. Clean and disinfect your home. Focus on frequently touched surfaces such as door knobs, faucets, light switches, and cell phones.
  6. Avoid crowds and stay at home as much as possible to further reduce your risk of being exposed.
  7. Closely follow the guidance from local, state and federal governments for your community to stay home and stay safe. Ask those who live with you to do the same.

You may have to continue to go to a healthcare facility for treatment (such as dialysis).  If you are on dialysis, you should not miss your treatments.  While at appointments, be sure to wash your hands frequently, avoid touching your face, try to keep distance from others in the waiting room and follow the advice from your care team.

Be sure to have supplies on hand for a period of time in case of an outbreak in your community.  This includes medications, over-the-counter medications and medical supplies, household items, and kidney-friendly foods.

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